https://www.usatoday.com/story/opinion/voices/2020/10/10/genetic-rare-disease-artery-rupture-veds-column/3595468001/
I ran from my lethal diagnosis for years. Let’s make this rare disease a household word.
Vascular Ehlers Danlos Syndrome has taken several members of my family, and counting. But meeting them, you wouldn’t know they had a lethal disease.